What is Cortical Visual Impairment

CVI is a term used to describe visial impairment that occurs due to a brain injury or growth abnormality. CVI is caused by damage to the visual centres of the brain and or the eye brain connection (visual pathways). which results in the brain not interpreting what is being seen. The visual information cannot be organised and can be described as a kaleidoscope of pattern and colour  without meaning. There are stimulation activities that parents, carers and therapists can do to improve the visual function. Spectacles and visual therapy can also play an integral role in improving the visual function.

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The purpose of Liesel’s Heroes, is to spread awareness of the rare chromosome deletion, Phelan McDermid Syndrome and help support Liesel’s extensive needs. There are only 2500 diagnosed in the world!

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